Yesterday Shelby had an ultrasound & liver clinic in Chicago. The ultrasound was good. The cyst has not grown since February although it is large to begin with. It measures 5 cm in diameter. They'll just keep an eye on it with regular ultrasounds. Her liver doctor wants to do an upper endoscopy on her this summer to check for varices in her esophagus as she has more spider veins on her face. Those indicate that her portal hypertension is worsening. Her labs looked pretty good, but her ammonia is up. That is of concern because we have seen some rather unpleasant behavior changes in Shelby since March. Could it be new baby in the family or just a phase? Yes, but an elevated ammonia level can cause behavior trouble, too. I'm waiting to hear back from them to see if they want to treat her with medication to try to lower her ammonia.
We found out this week that Avery has a milk protein allergy. Now she is on a hypoallergenic formula, but she does not like it and is not taking it well. It is even more of a struggle now to feed her. Ugh! Today she had her follow-up MRI. She did really well again. Hopefully we'll have those results this week yet.
I'll update when I have more information. Take care everyone !
1 comment:
Congrats on your families newest edition, and so sorry to see that she has had complications. She is a beauty!
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