Clinic Day

These pictures aren't too bad considering I took them from my web cam with a wiggly 6-year-old it was trying to focus on. Last night we came into Chicago for Cardiology and Hepatology clinic. We started at 8:30 a.m. with an EKG, then a full Echo and are now waiting to see the doctor. It is Noon.........Grrrrrr....Then we have 1:45 liver clinic that, I'm sure, promises to be just as long. We get great (but slow) care here, though. Shelby is being evaluated by Cardiology for Hepatopulmonary Syndrome and Pulmonary Hypertention.......Just saw the Cardiologist at 12:30. All looks perfect w/her ticker! No worries there unless we see a decline in liver function. We are to see her again in 2 years.

We had lunch at the cafeteria. Shelby likes it b/c they have chocolate SoyMilk - she's now on a lactose-free diet to try to help w/her tummy pain. So far, so good. Now we are in liver clinic waiting to be seen. Our appointment time was 1:45; it is now 2:47 and no one has seen her yet. We wait again....

Please pray for our friend Annika. She is currently inpatient here as she had a major bleed yesterday and was transported by ambulance here from Bloomington/Normal. I saw her this morning and she looks pretty good, but will be here for a while as the doctors try to figure out what's going on.


**Shelby is on a lactose-free diet and Avery is back to a milk-free diet. The milk challenge didn't go so well. She is now on Neocate Jr. She likes it, but it stinks up our kitchen!**