Wednesday, February 24, 2010

Biopsy results

Normal duodenum biopsies - NO sign of Celiac's or allergy cells present - lymphoid aggregates present - stomach biopsy showed mild gastritis likely secondary to portal gastropathy.

I just got that info from our FABULOUS nurse who is still at work at 8 p.m. We LOVE her! No input from Dr. Deutsch, just the "official" biopsy report.

From what I've read so far about this it seems as if this IS all directly from her liver disease. I have been trying to say that!!!!!! We'll see what Chicago says on Tuesday at clinic.

Friday, February 19, 2010

Test Day

10:29 a.m.
"Clean-out" day went o.k. Drinking all the clear fluids (popsicles, sprite, chicken broth) was fun; drinking the magnesium citrate was NOT. We had to page Dr. Deutsch around 9 p.m. to see if he wanted us to give her a 3rd dose as things weren't coming out that clear yet. We'll see when he comes out and talks to us how "clean" she got. She didn't want to put on that stupid mask and go to sleep, but was super-brave and laid down and just breathed the gas in like a champ. I wiped away her tears. Now we wait.....

1:56 p.m.
She did just fine and was discharged less than an hour after she came out of the procedure. We headed up to Roscoe to get Avery from having lunch with my parents, made a visit to a gift shop and now are hanging out at my parents while Shelby tries to refill her tummy. She weighed 3 lbs. less than her usual and her tummy was about 6 cm smaller than usual. She was cleaned out good!

Dr. Deutsch found redness in her esophagus, stomach and intestines which is to be expected with portal hypertension. She has 4 grade 1-2 varices in the lower part of her esophagus. Those are about the same, but I think she only had 3 last time she was scoped. He did find, though, some nodular mucosa (nodules on the inner lining of the intestine) on the lower portion of her duodenum. This possibly indicates Celiac's or H. pylori or nothing...but, he's never seen this before in her. This is something new. Could this be the answer to her pain? Wednesday we should have biopsy results.

Wednesday, February 17, 2010

Shelby: Friday tests

Shelby's continual tummy pains have led to tests being ordered. Today we found out that Friday morning she will have a colonoscopy and endoscopy at RMH. Tomorrow at 10 a.m. she will start her clean-out. Prayers, please, that it goes better than last time.

I just realized I really have not posted much about this "tummy pain." I've been doing little updates on Facebook. Back to the blogging for me. Bye, bye Facebook - at least for Lent, anyway. Shelby's tummy pain started in early November, was under control for a while and now back again. Since her abdominal CT back in November (her last admit) showed some thickening of her bowel walls...we'll see what that means.