Lots to think about

So...Scott and I have been questioning Shelby's ammonia level being elevated again due to her behavior. We requested labs be done so I took her on the 13th before school to have labs drawn. Her ammonia came back at 76 - up from 52 on August 3rd, but not as high as it was on July 20th which was 120. So, it was decided that her med would be increased by 1/2 a pill. That is going o.k. except that she is having more trips to the bathroom, but nothing horrible. The big shocker with her labs came in that her wbc fell down to 1.3 and her ANC was 471. She had been holding them up since we stopped her injections this summer. In fact, August 23rd they were 1.9 and 1045 - really good for Shelby. So this big drop had us concerned. When your ANC is below 500 you are considered severely neutropenic and at high risk for infection. We kept her home all week. Many phone calls were made to the Hepatologist who passed it over to the Hematologist. We were very unhappy with the way Hematology dealt with us. They said Shelby could go back to school without even looking at the correct labs! What a frustrating week of trying to get some answers. Scott and I are seriously considering seeking a 2nd opinion in Shelby's care because we feel like we are put on the back burner often with our concerns about Shelby. I vented quite a bit of frustration on the Hepatology nurse late Friday afternoon. It was decided that our Pediatrician would put in an order for Shelby to have labs Saturday morning just to see if things changed. They did. Her wbc went up to 1.9 and her ANC to 665. Enough to get her out of the house without a mask and back to school. Early Monday evening I got a call from Shelby's Hepatologist saying that she was recommending to the surgeon that Shelby have a Distal Splenorenal Shunt. She said we are going into our 3rd winter dealing with her numbers being bad so its time to do something. Something big. Now, we meet with the surgeon this Tuesday and he could say "No way. I don't think this is a good idea/she's not a good candidate" or he could agree with her fully. Either way, we will probably get a second opinion just to make sure this is the right path to take because this is major surgery. She would be in the hospital for a week and then home for a couple more recovering. It is so much to think about right now. We just want to do what's best for her. We would appreciate prayers that Scott and I will be able to see clearly and know the correct path to take. Thank you.