Very jaundiced less-than-a-week old Shelby held by 2-year-old RileyScott and I handed over our tiny 10-week little Shelby to the surgical nurse. She was carried away to have exploratory surgery to test for Biliary Atresia. If Shelby's little body "failed" the test, then, indeed, she did have this awful disease that kept ringing in our heads. About an hour or two (my memory fails me) into the procedure we received a call on the waiting room phone. "Yes, she has Biliary Atresia. Dr. Superina is proceeding with the Kasai procedure." . . . . . . Scott and I hugged each other and cried and cried. How could this be happening to our child? We were surrounded by my parents and my brother Tony throughout that day, but it seemed so unreal.
Fast forward 8 years: YES, Shelby has had many ups and downs on this crazy roller coaster ride, but that Kasai that the skillful Dr. Superina performed is hanging in there. It works! Had it failed, she would have been transplanted as a tiny baby.
Even after the rough journey we've had recently, I am still SO thankful that she is doing as well as she is. It could be a lot worse and I know that. But, it isn't.
Have a great weekend!
Me getting to hold Shelby for the first time after her Kasai
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