Shelby has been doing o.k., so-so, some days good, some days bad, some days fantastic, some days half-and-half. Its confusing. Her G-SCF injections make her feel rotten for 2-3 days after she gets the shot. Each week its gotten a little worse. This past week the tylenol wasn't making her feel better so we changed to motrin. I don't know if it made a difference or if the time of feeling yucky was coming to an end. Scott and I have each done an injection and home health feels were ready to be on our own. I know we are; I just don't want to be. I'm her Mom; not her nurse, but I am. And that's just the way it is.
Her allergy testing that was done while she was inpatient showed her dairy allergy to be "absent or undetectable" so we have been s-l-o-w-l-y adding dairy to her diet. She's had tummy pain complaints before we started and the complaints haven't changed. They are still the same. We are starting with such small amounts, too, that Scott and I really don't believe that the dairy is changing anything for the worse.
I don't even know who to talk to about her tummy pain. She was just fine this evening swimming in the pool then got out abruptly and said her tummy hurt so bad she thought she needed to go to the hospital. :-( She's just been acting very tired since and quiet (for Shelby).
Last night this happened, too...and the night before...and during the day before that...you get the idea. So frustrating!
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