Avery, Annika with her GOLD medal from the Transplant Games, Shelby and Riley having fun in Chicago yesterday when we were in there for the girls to meet with Dr. Jill.
Shelby's labs this week looked stable, with her wbc remaining at 2.0 (no need to re-start shots at this point) and her ammonia DROPPED from the 120's to 52!!!!!!!!! This is wonderful! She will continue on the new med for the ammonia, but only has to take it once a day. No labs for 4-6 weeks! She is having some issues with the skin on her eyelids and next to her nose that is quite annoying, but not bothering her otherwise. She is an 8-year-old little girl and wants to look GOOD! Of course, she does, but it is not "pretty" to her. Prayers please that the 2 new creams from the dermatologist clear that up.
We will (or at least hope to be) busy this week using up pool passes and other passes that are only good for this summer. Scott does not have to work until next Friday night, but will start working 12-hour shifts to work out with his nursing school schedule. That will be another adjustment for him, as if staying awake and alert for 8-hour shifts at night wasn't hard enough!
We will be busy until school starts and then a whole new type of busy, but are enjoying everyone being HEALTHY! Hope this update finds everyone doing well! Take care!