Sunday, February 26, 2012

Tuesday's clinic

Mom, Riley, Shelby and I headed into Chicago Tuesday for clinic.  Shelby had an echo of her heart and all looked great - PHEW!!!  In clinic, though, her weight was up even more from 2 weeks ago to make it a total of 10 lbs. she's put on since mid-January.  It was decided that she has ascites and was put on a diuretic.  Dr. Alonso also said that now, with the development of the ascites, she can write another letter asking for more exception points.  The letter was sent Friday asking that Shelby's PELD go from a 30 to a 35.  UNOS has 21 days to respond; we pray it doesn't take that long.  Shelby remains in good spirits and we have our goods days and bad.  We're just ready to move on with life.  This treading/standing still is getting old.  I know, in due time her liver will come, but we're getting pretty antsy here.

Please join us this Monday evening at 7 p.m. at Christ United Methodist Church for a COTA for Shelby M. fundraising meeting.  Also, please read the post below of how we are looking for male living donors.  Thank you.

1 comment:

Anonymous said...

Hang in there! So many people, and people you don't even know are thinking of you and Shelby every single day and sending positive thoughts your way. You are a wonderful Mom.