We got a call late this afternoon from Shelby's nurse saying UNOS approved more points for Shelby. Her PELD is now a 35. The highest you can go (unless you are listed for multiple organs) is a 40. Then its status 1b or 1a - we don't want to be listed as those (as they mean the patient has <7 days to live). We are in shock that our daughter's PELD is so high, but pleased that this should put her in a better spot to *compete* for a liver. My birthday is Friday. Guess what I want? A liver for Shelby.
We've had 2 men that are friends of my friend send in applications to be tested to be Shelby's living donor. Because we do not know them directly it is considered a "good samaritan" donation and there is a 30-day waiting period before the testing can even take place. That was a bummer to find out today.
Please, please, please let her liver come soon. Her baseline sats have been running lower; her pulse goes above 140 when she sits up too long; she gets dizzy when she gets up. She just looks rough. Her body is working so hard to keep up. Her situation is really fragile. So scary.