Tuesday, March 06, 2012

Darn you, nice weather!

Shelby's nose is so sore.  The inside is so raw.  That will happen when you're on 4 liters of oxygen continuously for 100+ days.  There is a bubbler on the concentrator, we have a humidifier in our living room and she uses saline nasal spray and a water-based lubricant in her nose several times a day.  Despite all that, she gets nosebleeds at least twice a day.  Then the horrible scabs form, causing pain, then it bleeds...repeat this over and over.  The pulmonologist has ordered for her to have a heated bubbler.  This should help keep the moisture in her nose better.  I hope so.

Today we had wonderful warm, spring-like weather.  My Mom offered to take the girls for a walk this afternoon, of course, with Shelby in her wheelchair.  Shelby kept desatting from sitting up and talking so they had to cut the walk short.  Then Avery and Riley wanted to stay outside and draw with chalk on the driveway.  This crushed Shelby.  She wanted to be a part of what they were doing so bad.  This is the tough stuff.  The part that people don't necessarily think about when a person is enduring a long-term illness.  Poor kid.  In an effort to cheer her up, Scott hauled her concentrator over to my parent's house and she is sleeping there tonight.  Hopefully a change of scenery and some Grammie and Papa spoiling will help her spirits.  My sweet Shelby.  Your liver is coming, baby, I just know it is.  We all just have to hang in there.

***Please leave comments so we can read them or share them with Shelby if they are for her, BUT please remember to sign at least your first name so we have some clue who they are from.  Thanks! :-)


Anonymous said...

She will get her liver. Such an adorable girl! I know you have probably heard this a million times, but hang in there! Being a Mom is the best job in the entire world and it just kills you when your kids are hurting. She is so lucky to have a wonderful Mom like you.

Anonymous said...

Hey, Shelby - I can't wait for the posts about all the stuff you will do once your liver has arrived. Fingers crossed and best wishes that it will be sooo soon.
Sven (from LF)