Tomorrow will mark 12 weeks post-transplant!!!! We are THRILLED with how well Shelby is doing! The lloonnggg wait seems like a bad dream now. So glad we made it through that and she was lucky enough to receive the ultimate gift of organ donation. She's silly, sassy, has awesome comedic timing...she's full of life. FULL. OF. LIFE. The kid who has *only* been off oxygen for 5 weeks now is swimming like the fish she is. Yes, we're very happy. Tomorrow she should be able to stop another med. One was stopped on Monday because we ran out and the team said it was o.k. to stop it then. That was her Nystatin that was 4 times a day. She's very happy to be done with that! Tomorrow they should discontinue her Valcyte and lower her prednisone :-) They should also lower her Prograf range from 10-12 to 8-10. Very cool.
This Tuesday is a fundraiser for Shelby at the Rockford Riverhawks game. Tickets can be purchased up to Monday and 50% of the proceeds go to Shelby's COTA account. Also, she'll be throwing out the first pitch. How cool is that?!?!? E-mail me @pnutsmom76@yahoo.com with "tickets" in the subject line if you want to buy some. They are $10/each and its Kids Eat Free Night. Game starts at 7:05 p.m.
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It gives me chills each time I read the updates to see how far Shelby have come in the past couple months. All of us that read this should receive inspiration to become an organ donor. I am so happy for all of you and continue to pray that Shelby will continue to grow stronger each day and your family will enjoy every moment you have together.
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