Who has time for summer fun when you have to be at the doctor's this much?!?!
Monday - sleep study in Rockford to see if she has sleep apnea and needs her tonsils and adenoids removed
July 14th - Upper endoscopy in Chicago to see if she has varices from her portal hypertension
Aug. 17th - PFT's and Pulmonologist in Chicago to see if she has reduced lung function from her liver disease
Sept. 22nd - Bubble Echo and Cardiologist in Chicago to see if she has Hepatopulmonary Syndrome. (although this is going to be sooner, they just haven't called back with the new date yet)
These are not "routine" tests that she is having. Her Hepatologist (Liver doctor) in Chicago believes Shelby may have Hepatopulmonary Syndrome. She's thought that before too, but so far, so good. If she does have Hepatopulmonary Syndrome, back on the waiting list she goes with several exception points to get her transplanted ASAP....and we thought things would be calm for a bit after the "mass" scare. *Sigh* Either she'll have this, and things will happen very fast or she won't have it and we'll just wait for the next thing of concern to pop up. That's how it goes on this rollercoaster of liver disease.
1 comment:
Jennifer I understand the roller coaster all too well. We will be keeping our fingers crossed in Florida!
Love, Auntie Lu and Uncle Freddie
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