We saw Shelby's GI here in Rockford last Monday for her tummy pain. He thinks it is her functional pain and is not surprised that it "flared up" a week after her learning that she was going to have surgery. Makes sense to me. He put her on peppermint oil for her tummy aches and suggested that we avoid things like sugar-free gum to help minimize her discomfort. She has been doing better,tummy-wise. Scott and I did notice, though, that her HE symptoms were back. A level was run and her ammonia is up a bit to 83. Her med for that has been increased a bit and we'll re-check it again in 2 weeks. Shelby is now on 33 doses of 15 meds a day!!!
We are busy working on making arrangements for Riley and Avery while we are in Chicago with Shelby during her surgery. Scott is doing awesome in nursing school and I go to see the Nephrologist next week to see if he has figured out my potassium "issues." That's all for now.
1 comment:
Best wishes to you and your family...I first found you (months? maybe a year? ago) at Moreena's blog. I haven't checked in over here in awhile, am getting caught up, and am thinking of you all.
Post a Comment