Monday, September 19, 2011
We have to be in Chicago tomorrow morning for Shelby's annual visit with the cardiologist. Usually these are long, hum-drum clinics, but we actually have something to talk about now - her Hepatopulmonary Syndrome. We're looking for more direction on how much/how often with the use of the oxygen. Shelby's sats have been dropping even lower. We've had her on as much as 4 liters of oxygen at night. That's up quite a bit from the .5 liters we started at about a month ago. I'm afraid her HPS is progressing rapidly. :-( This is such a scary time, but I try to focus on all the good that will come for Shelby when she gets a healthy liver. We still have not heard on her exception points being granted. She's only been listed for 11 days; UNOS has 21 to respond. Sigh...time for my girl to get healthy. She went to a birthday party Saturday afternoon and it took her until this afternoon to get her strength back. That's not good....
Posted by Jenn at 9/19/2011 11:42:00 PM