Wednesday, May 05, 2010

Sorry for the lack of updating...

I'm not abandoning my blog by any means, but this past week its been easier to gripe about what's going on with Shelby on Facebook. It was just easier to post one-liners about the situation out of my frustration.

But I do want to keep you loyal and faithful followers in the loop...so Friday in Chicago she had labs (like a trooper!), full PFT's, an abdominal ultrasound and an appointment with her therapist. Her labs showed only a slight (.2 of a point) change in her wbc, but her ANC did go into the 600's making it o.k. for her to go back to school yesterday. Her pulmonologist said her PFT's looked o.k., but to repeat them in 1-2 months and see him in clinic. The GI in Chicago said it was finally o.k. to give her the Elavil for her tummy pain since her PFT's looked o.k. So now she is being treated for her tummy pain, but her med can make her sleepy and can take a while to build up in her system. We shall see. Its been hard for her to go back to school after being gone for a week, but today was better than yesterday for her.

When I read the paragraph above, it looks really simple. Not complicated. But, it isn't easy. Scott and I are torn so many times on how to react and help Shelby get through her pain. Do we push the doctors more for answers? How do we explain this to Riley who is mad to come home and see her sister acting fine, when an hour before Shelby was feeling rotten? We just manage.

1 comment:

Belinda said...

Oh Jenn, I soooooo get that! Sian gets so mad at Dylan in just the same way, it's a constant battle in our house too!
((((HUGS))))
Belinda - LF