O2 all the time :-(

Tuesday we had a heck of a time keeping Shelby's oxygen levels up.  They were in the low 80's to high 70's range with just a tad bit of movement.  We kept having her sit when her lips turned purple and her hands turned dusky only to have her sats go up to 88-90%, then immediately fall again when she started moving.  I called this info into Chicago the next morning and the pulmonologist ordered her to be on 2 liters of continuous oxygen and upping it to 5 liters (if needed) if her sats fell below 88%.  We found out after a few minutes of her being on the O2 and then checking her sats that 2 liters was NOT enough to keep her above 88%.  Since then she's mostly been on 3 1/2 - 4 1/2 liters.  :-(  Monday her doctor will be writing another letter to UNOS asking for more exception points in light of Shelby getting sicker so quickly.  Prayers, please, for a "new" liver soon.  As much as I love the comforts of home, I'd rather be sleeping in an uncomfortable hospital chair if it meant my daughter having a chance to be healthy.