Harder to update when your kid's awake:-) She's much more coherent today. :-) She's eaten ice chips, apple juice, water, taken oral meds and a bit of a milkshake. If she eats a bit more the ng tube can come out. She got up to the side of the bed (with a ton of support - her head wobbling around reminds me of a newborn's) and stood up about 3 times - with MEGA help from her wonderful nurse Meghan, but still a wonderful accomplishment....and she didn't desat like crazy while doing it.
They're trying to get her off the NO completely. While I was sleeping at Kohl's House earlier, they tried to turn it off (its down to the lowest setting), but she desatted into the high 70's. As I type they are moving the ventilator out of her room :-) They are going to turn off the NO completely and turn her O2 flow back up and see if that works.
Things are progressing very nicely; so much that Scott and I felt comfortable not being here for rounds. Of course, my parents were here with Shelby during that time. She was very happy to see Grammie when she woke from a little snooze.
All in all, a great day so far. She is weaker than I imagined, but when I think of all she's been through it makes sense. I'm just so used to my super-strong girl. I'll update later and hopefully have some pics from today.