6:29 p.m.
I spent most of the day at Kohl's House resting and catching up on bill paying. From Scott's report, it sounds like Shelby has had a great day. Her labs are now spaced out to 3 times a week. For my liver peeps - AST 43, ALT 156, GGT 191, direct bili .3, platelets 118,000. They did start the ng feedings of Pediasure at a rate of 25 ml/hour. Overnight they'll up them every 3 hours to a max of 45 ml/hour. They're just trying to get her gut to wake up a bit more. This is the kid that was on 3 different meds for getting her gut moving "normal" anyway. Once things start moving, maybe she'll feel hungry. We shall see. Physical therapy came and worked with her and Occupational therapy will come evaluate her probably tomorrow. She did eat some Nutella and breadsticks that Grammie had brought her. She played Body Parts bingo (on the hospital's TV channel) and had visits from Dr. Jill and Joanne. She's been napping now (again) for about an hour. That methadone sure knocks her out. The resident just came in and said they're going to switch her to oral methadone and ativan to help with her being so sleepy. Also, she's down to 7L of O2!!!! Overnight they're going to try to get her down to 4L...4L means she can go to the floor. Maybe not like tomorrow, but soon :-)
10:08 a.m.
She slept 10 hours last night!!!! Whohoo! The goal for today is getting her eating more and try again to get up to the chair. She is so weak she can barely bring her hands to her face, but to help strengthen them I had her pick up some ice chips by hand so she could work on getting her hand to her mouth. It was very difficult for her, but she did it. As her Mom I have to fight the urge to do everything for her as I know that will not be helpful in her recovery. They were able to get her down to 9L of 100% O2 last night :-) Now, I'm going to rest at Kohl's House.
4:00 a.m.
Just wanted to do a quick update on the tablet. Our girl is SO much better. Very, very weak, but no more seeing crazy, scary things, and having bad withdrawal :-) It was amazing last night when she wanted to see something on her ipod, but we needed to log it on to the hospital's wifi. I said "I'll have to get my code" and she said "I remember it" and proceeded to rattle it off.....perfectly. All 8 letters/numbers. Um...she was just on a ventilator for 8 days and on mega doses of pain meds and amnesia/anxiety meds and I can't even remember it every single day when I turn my laptop on. VERY impressive, my girl, VERY impressive :-)
I spent most of the day at Kohl's House resting and catching up on bill paying. From Scott's report, it sounds like Shelby has had a great day. Her labs are now spaced out to 3 times a week. For my liver peeps - AST 43, ALT 156, GGT 191, direct bili .3, platelets 118,000. They did start the ng feedings of Pediasure at a rate of 25 ml/hour. Overnight they'll up them every 3 hours to a max of 45 ml/hour. They're just trying to get her gut to wake up a bit more. This is the kid that was on 3 different meds for getting her gut moving "normal" anyway. Once things start moving, maybe she'll feel hungry. We shall see. Physical therapy came and worked with her and Occupational therapy will come evaluate her probably tomorrow. She did eat some Nutella and breadsticks that Grammie had brought her. She played Body Parts bingo (on the hospital's TV channel) and had visits from Dr. Jill and Joanne. She's been napping now (again) for about an hour. That methadone sure knocks her out. The resident just came in and said they're going to switch her to oral methadone and ativan to help with her being so sleepy. Also, she's down to 7L of O2!!!! Overnight they're going to try to get her down to 4L...4L means she can go to the floor. Maybe not like tomorrow, but soon :-)
10:08 a.m.
She slept 10 hours last night!!!! Whohoo! The goal for today is getting her eating more and try again to get up to the chair. She is so weak she can barely bring her hands to her face, but to help strengthen them I had her pick up some ice chips by hand so she could work on getting her hand to her mouth. It was very difficult for her, but she did it. As her Mom I have to fight the urge to do everything for her as I know that will not be helpful in her recovery. They were able to get her down to 9L of 100% O2 last night :-) Now, I'm going to rest at Kohl's House.
4:00 a.m.
Just wanted to do a quick update on the tablet. Our girl is SO much better. Very, very weak, but no more seeing crazy, scary things, and having bad withdrawal :-) It was amazing last night when she wanted to see something on her ipod, but we needed to log it on to the hospital's wifi. I said "I'll have to get my code" and she said "I remember it" and proceeded to rattle it off.....perfectly. All 8 letters/numbers. Um...she was just on a ventilator for 8 days and on mega doses of pain meds and amnesia/anxiety meds and I can't even remember it every single day when I turn my laptop on. VERY impressive, my girl, VERY impressive :-)
10 comments:
Shelby always has been an impressive little girl with everything she has been through. I am sooooooooooo happy she is doing so well.
Continued prayers and lots of hugs and kisses coming your way!
You'll have to remember to tell Joanne how in the midst of her ramblings she corrected me that Joanne's accent is Scottish not English!! I love you and miss you, Shelbelle!!
Can't tell you how happy I am to read this kind of update on Shelby. She is simply amazing, you all are. We have been & still are rooting for her every step of the way. Lots of love - Nikki, Evie & family (LF uk) xx
It's awesome to hear the great updates of progress. Keep it us Shelby.
So glad she's awake and communicating AND that you and Scott are able to relax a bit! I'll bet her strength just flies back.
WOW it's so amazing to read your updates, and think of how far she has come in the past few days. From a ventilator to eating a milkshake and sitting up! Tons of hugs and prayers, and thank you for sharing all of this with those of us who cannot even imagine finding your kind of strength. <3
Pebbles
Such great news! She be stronger every day and soon it will be hard to keep her in bed! Love you guys! See you again soon.
Nicole Schandelmeier
Go Shelby! I've never been able to remember the access code. With all that spunk, I am sure her physical energy will follow. Looking forward to more great updates!
Wonderful update. I'm also rooting for Shelby!
ALl the best,
Sven (from LF)
I am so happy to read this update. Such progress! Good things are coming your way, girl.
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