Day #5 post-op

9:42 p.m.
Went over to Kohl's House, took a shower and started some laundry.  Now Scott is over there drying it.  When I got back here Shelby was restless, but she finally settled down in the past 15 minutes.  Her sats are rock star right now - 96%.  Her temp is up a bit, though, at 38 C (100.4).  The nurse gave her a Tylenol suppository in the hopes that her temp doesn't spike.

Had to take a bit of a break there in updating.  She moved so I went to comfort her and noticed that her site of her JP drains was bleeding/leaking more than usual.  The nurse called the resident to come in and look at it and she will be in contact with the liver team to see if they want to do anything about it.  Getting pretty antsy about getting this kid to surgery and closed tomorrow!

5:53 p.m.

Seriously people, for computer savvy as I like to think I am, I cannot use paint correctly.  I just wanted to make little black boxes to cover up her girly parts, but ended up having to use the brush to make my boxes.  If anyone can explain it easily to my sleep-deprived brain, please leave directions in the comments. :-)

 Shelby just got her dressing and bedding changed.  She did well with her oral care, Nystatin and suctioning.  She's been listening to music today on her iPod.  So glad I found her little tripod before this.  It worked well for her making videos before the transplant and now serves well holding her iPod on her bed next to her :-)  Selena Gomez, music from the Disney show Shake It Up and Justin Bieber were on the playlist today.  She HATES relaxing music; it makes her sad so I said we wouldn't play any.  She smiled when her tunes came on.

Her iPod on her Gorillamobile flexible tripod.

I didn't quite get it in here, but Shelby and Daddy are holding hands.

The anesthesiologist came in and talked to me and the doctors ordered her Heparin to be stopped tonight so things are looking really promising for her to go to the OR tomorrow.  There's even a tentative time set - 2 p.m. :-)   So, we shall see...


9:27 a.m.
No surgery today, but she's on the schedule for tomorrow.  She is fluid-negative, but they want her to be even more.  So, pee away little girl, pee away!  Her sedation status continues to be monitored.  There were a few times last night where she had us jumping up to grab her hands before they got to her breathing tube, but she would eventually settle back down.  I really think she is more irritated than in pain so that is good.  The game plan for her today:  rest, pee and stay stable :-)