12:33 a.m.
Scott is taking the first sleep shift tonight. Shelby is resting peacefully. They've been able to come down on her morphine drip today, she's tolerating her feeds, she's hardly needed any prn's and she continues to handle her vent and NO setting decreases. Once again, if this path continues the plan is to extubate her after rounds in the morning around 11 a.m. I am excited and nervous. Pray for all to go well please :-)
2:25 p.m.
Nap was great! Scott is still at Kohl's House sleeping. I think he's about 2 years behind on his sleep :-O We have AMAZING nurses here allowing us to feel o.k. to rest while she's sedated. I napped in her PICU room, but slept through all her cares. Shelby has had a great day. She has been resting fabulously. More vent settings have come down, the NO level came down, her insulin drip has been stopped (fingers crossed it doesn't have to be restarted) and they began giving her Pediasure through her ng tube. She actually had an anderson tube in her nose that is for draining and in surgery yesterday they put a feeding tube in her other nostril. Today the anderson was able to pulled :-) Happy Mama here! If things keep progressing this way the plan is to extubate her tomorrow :-)
9:14 a.m.
Ultrasound looks great!!! Working towards extubation tomorrow. Now off to nap :-)
4:41 a.m.
Night went very well. Scott and I were very confident in her "new" sedative and with our night nurses that we actually left around 10 to go nap at Kohl's House. That is a *first* for us to leave her without any family here. That "nap" lasted until 3:30 a.m. Ahhhh.....feels good. Now we're back over here and she did great while we were gone. A few times she got her prn's because her blood pressure went up a tad, but they were able to come down on several vent settings. Since she's been on the vent for almost a week, its no surprise to see on her chest x-ray some fluid at the base of her lungs. They are not expanding all the way so they have that particular vent setting a little higher than when she went in surgery. She's taking more breaths on her own, though; just not full ones. Around 7:30 she should get her ultrasound and the surgeon should be here for it because if there are any problems they'll take her back to the OR asap. Pray that blood is flowing just fine. :-)
Scott is taking the first sleep shift tonight. Shelby is resting peacefully. They've been able to come down on her morphine drip today, she's tolerating her feeds, she's hardly needed any prn's and she continues to handle her vent and NO setting decreases. Once again, if this path continues the plan is to extubate her after rounds in the morning around 11 a.m. I am excited and nervous. Pray for all to go well please :-)
2:25 p.m.
Nap was great! Scott is still at Kohl's House sleeping. I think he's about 2 years behind on his sleep :-O We have AMAZING nurses here allowing us to feel o.k. to rest while she's sedated. I napped in her PICU room, but slept through all her cares. Shelby has had a great day. She has been resting fabulously. More vent settings have come down, the NO level came down, her insulin drip has been stopped (fingers crossed it doesn't have to be restarted) and they began giving her Pediasure through her ng tube. She actually had an anderson tube in her nose that is for draining and in surgery yesterday they put a feeding tube in her other nostril. Today the anderson was able to pulled :-) Happy Mama here! If things keep progressing this way the plan is to extubate her tomorrow :-)
9:14 a.m.
Ultrasound looks great!!! Working towards extubation tomorrow. Now off to nap :-)
4:41 a.m.
17 comments:
Praying all goes well today....so glad you and Scott were able to get some rest. Sounds like Shelby is in very good hands.
Hugs and kisses!
This makes my heart smile!
Maggie, LF
Woo Hoo!!
Thank you Jesus!!
-Lori & Bruce
Woo hoo!!! Such great news to read!! So happy the ultrasound looks great!! Praying she will be able to be extubated tomorrow so you can interact with her the way you should be!! Also praying you & Scott will be able to catch up on your sleep soon!!
Lisa (Kylee's Mom) cjglke on Liver Families
www.caringbridge.org/visit/kyleeglaser
Great news! Hope extubation does happen tomorrow. Shelby will have a lot to say to you! :-)
Maggie
Awesome news!! Glad to hear that you and Scott were able to get some rest. Praying for you all.
Great news for Shelby! We continue to pray for all of you! Try and get some rest! April Wessels
What wonderful news!!! We hope and pray everything continues to go Shelby's way...stay strong!!!
Lori,Pete,Kaylin and Jake
Wonderful news - keep them coming, Shelby!! :)
All the best,
Sven (from LF)
Great news Shelby....you are such a great fighter! Keep it up!!!
Love you,
Auntie Lu
Yay! Keep yanking those tubes (not you Shelby) can't wait for the next few days. So happy for you guys.
Maggie, LF
Loving these fabulous reports!!!!!!!!!!!!! --Harriet from LF
Fingers crossed on all of the tubes coming out soon. Thanks for all the updates. I can only imagine how tired you are and doing those updates must seem like the very last thing you want to do. But we, the readers, appreciate them so very much.
Margaret
I am so excited to read these updates! It sounds like a positive spiral has begun. -Linda from LF
All of this sounds so encouraging. You have a great team, and you and Scott ARE a great team.
So wonderful to read about Shelby's progress!
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