Friday, March 13, 2009

Back for labs

5:50 p.m.
Phew! Just heard. All numbers stable or very slightly improved. Prayers, please, for a CALM weekend.

5:06 p.m.
Around Noon I got home from some appointments this morning. I looked at Shelby's eyes and was surprised that they looked even more yellow; Scott agreed. We were told that her jaundice was most likely caused from the IV antibiotic she was given. If that was the case, then why would she still be yellow (or even more yellow)? Dr. Deutsch was called and labs were ordered stat. Now we wait to hear on those results.

Some of you have asked "Why don't they just transplant her?" While she is experiencing more complications lately, transplant is not something to enter into lightly. Transplant would cure her Biliary Atresia, but she would be open to all the complications that can and probably to some extent will, come with having an organ transplant. Our little friends Annika and Natalie have experienced more than their share of complications. Even those who have a pretty smooth post-transplant road will always be immunosuppressed. Very frequent monitoring of blood levels and immunosuppressant medication must be done. Transplant is very risky surgery for anyone. So...until she's really sick, her doctors will not pursue it with her. As of today (if she were listed) her PELD would be 0. Zero. You don't get an organ at 0; its not unheard of, but not very likely at all. I hope that answers the question for those of you who have asked or wondered. :-)


Anonymous said...

We are thinking of you! Thanks for the update!!

Carolyn Michelle said...

Did Shelby enjoy her gifts? Sorry for not calling, things got INSANE with my last show being Sunday. I'll have to have the girls over for a movie night when I get the dvd of the show. :-)
Love you guys lots,