Monday

4:54 p.m.
Surprise, surprise...the PICC line is in! Shelby did fantastic (from what I hear - I was not allowed in the room...grrrrr). She seemed very chipper when I got to see her afterwards so I will take it at our awesome child life specialist's word. She did get to go back with her (Thank You!). Except for confusion in the its going to happen, its not going to happen, its going to happen...well it happened. Its in. She is doing really good.

I finally got a shower in and am thankful for that. My Riley has been home all day with a temp in the 100-range. Sound familiar? Yeah, well when you don't have liver disease it just means staying home and riding it out...but this Mommy should be snuggling on the couch with her - sigh.

We're trying to nail down a time for her MRI so Scott knows when to come in tomorrow. I'll update later...

12:58 p.m.
Dr. Ekong (she is great Becca!) came in and gave me the game plan. They DO NOT think it is a UTI or kidney infection. Just not enough bacteria to indicate that. But it does not look like her fever was related to her cold, either. So, as of right now, she is being treated for suspected cholangitis. Usually their plan of attack is to biopsy then treat w/6 weeks of IV antibiotics if the biopsy shows the Big "C." Since she's already been on antibiotics, but her biliruben has gone up, they will treat w/2 weeks IV antibiotics, we'll return to clinic in a few weeks, have the PICC line removed and see what happens then. Yes, she'll have a PICC line put in while she's under for her MRI tomorrow. We're still looking at being here until Thursday, but going home w/a PICC line instead of staying here for 2 weeks sounds just fine to us.

10:38 a.m.
Finally, we got some sleep. I questioned her sharing a room due to her neutropenia and they moved us to our own room. I said it could wait until morning, but they move fast around here. So, at 4 .m. I was told to not get too comfy b/c we were moving and around 5:15 the actual move happened. Then an hour later, her IV alarm was going off - ah, the joys (not!) of sleeping in a hospital. I think from about 6:30-8 we got some solid sleep. At 8 a.m. the lab tech was in here to draw blood - not off her IV - no EMLA. Shelby was not happy, but it was quick and he was good. Tomorrow we will be prepared with numbing cream. I've already spoken to the nurse about that. We still haven't seen the doctor today, yet, but she is being treated with Gentamyacin and Zosyn. They're going in with the big guns to knock out whatever's been causing trouble. Good news is that she's been fever-free since we arrived here. I'm hoping to catch a few zzz's here soon.

Riley is running a low-grade temp, but Grandma Nea is keeping a close eye on her. Sounds like Avery is doing good being her usual toddler self. Scott is exhausted! After taking me back to the ER last night (after I came home to pack) he had to come home and do some homework that's due tonight. This morning he has his CNA classes, then goes straight to his "make-up" clinicals (since he'll be missing tomorrow) for 2 hours, home for a bit and then off to Anatomy & Physiology until 8:40 p.m. Poor guy! He has an A & P test Wednesday night so tonight's lecture is very important. Tomorrow he'll be joining us for Shelby's test. We still don't know what time that will be.

{{Sigh}} Missing home, Scott, my Riley and Baby A.