Wednesday

1:58 a.m.
So far, so good - that is, for her PICC line infusion. This is the first one on our own since the nurse came today. I just woke Shelby up, moved her to the couch and she fell right back asleep. I thought I'd catch up on e-mails and stuff the 45 minutes while her med is running.

We were overjoyed to be reunited as a family. Words cannot describe it. So glad to be HOME.

11:52 a.m.
So, here's the news. It is not a complete answer because they need more testing. So the mass does not look fluid-filled (which would be good). It does appear solid (not good), but they need to take a biopsy to know what it is. It is 1-2 cm (small) and on the back side of her liver. Whether or not it can be biopsied with a needle or an open biopsy needs to be done has yet to be determined. They will talk to IR (Interventional Radiology) to see if they think they can reach it with a needle. They do want to be proactive about getting this biopsy done. This is nothing to sit on. In the next week or so she'll have the biopsy. We are bustin' outta here, though. Her IV med is running for 1/2 an hour and then we're gone.

Our hearts are heavy and full of worry...
10:57 a.m.
So we were told this morning that the "team" was going to sit down and go over her MRI results...at 9:30. Still no word. We still wait. The plan was to be discharged by 10 a.m. to make it home in time for Scott's clinicals at 1 p.m. Now that's not going to happen. In fact, depending on the MRI results she may not be discharged at all. They may want a biopsy of the mass. Sigh, sigh, sigh.

I came down with something last night. Most likely what Riley is at home with. A fever of 100, chills, achy...miserable. I'm a bit better today, but still not feeling good.

We did have a consult with Hematology about the GCSF (neupogen) infusions. They are not recommending them. Although her ANC runs low, they looked back at her labs and said that they do rebound on their own so they do not want to start something with as many possible side effects as GCSF. We are to follow-up with them in clinic in 3-4 weeks. One more specialist...