Good, busy day. Foley came out. Surgeons haven't been back to pull the jp drain, though :-( Shelby sat up in a chair for about 30 minutes :-) Scott and I were educated by the liver APN's and the pharmacist on Shelby's meds and on going home. No, its not happening soon, but it is encouraging that her biggest holdup is her O2. They got her down to 6L last night, but she kept desatting into the mid-80's so they had to bump her back up to 8L. That's o.k. We already know that it will take months for her lungs to heal. The goal is to get her down to 4L so she can go home on "regular" O2, not high-flow. We're still trying to get her to eat more so she can get her NG tube out, but that's not looking the greatest. Please send hunger vibes Shelby's way :-) Thanks!
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| Lisa and Aiden - like her neck pillow? :-) |
9:33 a.m.
She had a good night. I slept here with her and Scott slept at Kohl's House. She's very sleepy still from her meds. They're talking about weaning them more. They're also talking of removing her last jp and her foley. All those things should hopefully make her feel more like moving. Its like she's drunk now. When they do rounds, they will finalize all that. I'll update after.
5 comments:
Fingers crossed for more great progress today! --Harriet from LF
Keep the wonderful news coming!!! She is truely an inspiration to all...kept fighting Shelby!
Come on Shelby! You are doing great! Keep it up! You are such an impressive little girl.
Love you,
Auntie Lu
Aww she looks amazing. I know she looks puffy and tired but she is 'on the other side'. I am so so happy. And the pillow made me smile so big!! Love you guys!!
Is H.B. the pharmacist for liver as well? When are they having you do the 24-hour boot camp, or is that not applicable to liver?
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